Privacy Policy - myIIH - Track, Understand, and Manage Your IIH Journey
← Back to Home

Privacy Policy for MyIIH

Last Updated: August 2025

Introduction

MyIIH (“we,” “our,” or “the app”) is committed to protecting your privacy. This Privacy Policy explains how we handle your information when you use our mobile application designed to help people with Idiopathic Intracranial Hypertension (IIH) track their symptoms and health data.

Information Collection and Use

Data Storage

All data is stored locally on your device. We do not collect, transmit, or store any of your personal or health information on external servers. This includes:

  • Pain levels and locations
  • Symptom records
  • Medication logs
  • Barometric pressure readings
  • Personal notes and observations
  • Settings and preferences

No Cloud Sync

The app does not offer cloud synchronization. Your data remains exclusively on your device unless you explicitly choose to export it.

Data You Control

You have complete control over your data:

  • Export data as CSV or PDF files for sharing with healthcare providers
  • Delete all data at any time through the app settings
  • No account creation required
  • No data sharing with third parties

Permissions

The app may request the following permissions:

iOS Permissions

  • Face ID/Touch ID: Optional biometric authentication to protect access to your health data
  • Location (optional): Used only to provide local weather/barometric pressure data
  • Apple Health: For gathering barometric data

Android Permissions

  • Biometric/Fingerprint: Optional authentication to protect your data
  • Location (optional): For weather and barometric pressure data
  • Storage: To save exported reports to your device

Note: All permissions are optional and the app will function without them, though some features may be limited.

Data Security

Local Encryption

  • Data is stored using the device’s native SQLite database
  • Protected by your device’s security features (passcode, biometric locks)
  • Optional app-level biometric authentication for additional security

No Data Transmission

  • The app does not transmit health data over the internet
  • No analytics or tracking services are used
  • No advertisements

Data Sharing and Export

User-Initiated Sharing Only

Data sharing occurs only when you explicitly choose to:

  • Export reports as CSV or PDF files
  • Share files through your device’s native sharing options
  • Email reports to healthcare providers (using your device’s email app)

Healthcare Provider Reports

Generated reports contain only the data you’ve entered and are shared only through methods you choose (email, messaging apps, etc.).

Children’s Privacy

This app does not knowingly collect information from children under 13. The app is designed for individuals managing IIH symptoms and should be used under appropriate medical supervision.

Third-Party Services

Weather Data (Optional)

If you enable weather-based barometric pressure tracking and your device doesn’t have a barometer:

  • The app may use your location to fetch local weather data
  • This is done through public weather APIs
  • No personal health data is sent to weather services
  • Only your approximate location is used for weather queries

No Analytics

We do not use any analytics services, crash reporting, or usage tracking.

Your Rights

You have the right to:

  • Access all your data (it’s all visible in the app)
  • Export your data at any time
  • Delete your data completely
  • Use the app without providing any personal information

Data Retention

  • Data remains on your device until you delete it
  • Uninstalling the app will remove all associated data
  • We recommend regular exports for backup purposes

Changes to This Policy

We may update this Privacy Policy from time to time. Any changes will be reflected in the app with an updated “Last Updated” date. Continued use of the app after changes constitutes acceptance of the updated policy.

Medical Disclaimer

This app is a tracking tool only and does not provide medical advice. Always consult with qualified healthcare providers for medical decisions. The app is not a substitute for professional medical care.

Contact Information

For questions about this Privacy Policy or the app, please contact:

Compliance

This app is designed to respect user privacy and aims to comply with:

  • General Data Protection Regulation (GDPR)
  • California Consumer Privacy Act (CCPA)
  • Health Insurance Portability and Accountability Act (HIPAA) principles (though the app itself is not a covered entity)

Summary

Your privacy is paramount.

  • ✅ All data stays on your device
  • ✅ No accounts or sign-ups required
  • ✅ No ads or tracking
  • ✅ You control all data sharing
  • ✅ Optional security features
  • ✅ Complete transparency

By using MyIIH, you agree to this Privacy Policy.